4 September 2009

DISEASES AND DISORDERS

Access to Specialist Neuromuscular Care: The Walton Report (24th August 2009)
The Inquiry was launched in December 2008 to carry out an in-depth investigation looking at access to specialist, multi-disciplinary care for people living with muscular dystrophy and related neuromuscular conditions. This arose from the concerns of the All Party Parliamentary Group that the existing specialist services in the four leading neuromuscular centres were vulnerable through their reliance on charitable funding and the lack of succession planning for the leading clinicians.

The Parliamentary Inquiry has received both written and oral evidence that underlines the need for urgent action to improve and strengthen multi-disciplinary health care for this vulnerable group of patients living with rare and very rare conditions.
Report

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